Cause Details
Medical

Layla’s Story

In 2021, Layla Hurt, a 12-year-old girl and talented athlete, broke her femur while playing on the playground. As her leg began to heal, she slowly lost her ability to move her foot, then her leg, followed by the loss of mobility in her neck and right arm. She experienced constant pain, and gradually was unable to walk. As the pain spread throughout her body, she was diagnosed with CRPS, Complex Regional Pain Syndrome.

Her parents, Justin (Ft. Worth firefighter) and Faith (full-time caregiver) took her to local specialists, who had no success improving her condition or relieving any of her pain. They then moved on to see out-of-state specialists, including experimental treatments, all with little success. This entire process cost hundreds of thousands of dollars out of pocket. 

Meanwhile, Layla’s condition continued to deteriorate. Her limbs began to contracture (rigidity and degeneration of joints) and became excruciatingly painful and impossible to move. Eating became so agonizing that she was only able to eat a few foods in very small amounts, and her digestive system could no longer process the food she ingested without external assistance.  

A good night's sleep for Layla averages an hour a night. She is also suffering from intermittent tachycardia, difficulty breathing, syncope, and muscle spasms all while being unable to speak above a whisper. 

Throughout all this, her parents have done everything possible to help their daughter and watched helplessly as her health worsened.

This spring, Layla saw a new doctor at Scottish Rite hospital, who suggested that they start all over and run new tests on Layla, including genetic tests. The results came back with an additional diagnosis of Emery-Dreifuss muscular dystrophy (EDMD). 

EDMD is a rare, inherited genetic disorder that affects skeletal muscles, digestion, lungs, heart, and vocal cords. After treating Layla for two years for CRPS, the Hurts found out that their daughter had also been suffering from untreated Muscular Dystrophy all along. 

Layla’s Needs

Now that the Hurts finally have some direction, they need your help. They are stretched to their financial limits from years of ineffective treatments and are awaiting multiple specialists’ appointments and possible surgeries. Some urgent needs they have are money to pay the specialists and surgeons for current treatments, as well as a lift chair to help move Layla around with as little pain as possible.

This beautiful young lady, 15 years old now, finally can get the care that she needs if we can band together and help her. 

If you are unable to assist financially, please consider sharing this post so that others might have the opportunity to help. The Hurts and everybody that loves them thank you for your generosity. 


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July 20th, 2024 Fort Worth, TX
Colin Parr
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Medical

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$6,890 of $200,000

Ends in 16 Days


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3.445% Complete (success)

Connect and Share

When you become an advocate, every click and donation made via your unique advocate URL will be tallied in your Help a Hero account.

Organizer Info
Logo image
July 20th, 2024 Fort Worth, TX
Colin Parr

Cause Details

Medical

Layla’s Story

In 2021, Layla Hurt, a 12-year-old girl and talented athlete, broke her femur while playing on the playground. As...

Layla’s Story

In 2021, Layla Hurt, a 12-year-old girl and talented athlete, broke her femur while playing on the playground. As her leg began to heal, she slowly lost her ability to move her foot, then her leg, followed by the loss of mobility in her neck and right arm. She experienced constant pain, and gradually was unable to walk. As the pain spread throughout her body, she was diagnosed with CRPS, Complex Regional Pain Syndrome.

Her parents, Justin (Ft. Worth firefighter) and Faith (full-time caregiver) took her to local specialists, who had no success improving her condition or relieving any of her pain. They then moved on to see out-of-state specialists, including experimental treatments, all with little success. This entire process cost hundreds of thousands of dollars out of pocket. 

Meanwhile, Layla’s condition continued to deteriorate. Her limbs began to contracture (rigidity and degeneration of joints) and became excruciatingly painful and impossible to move. Eating became so agonizing that she was only able to eat a few foods in very small amounts, and her digestive system could no longer process the food she ingested without external assistance.  

A good night's sleep for Layla averages an hour a night. She is also suffering from intermittent tachycardia, difficulty breathing, syncope, and muscle spasms all while being unable to speak above a whisper. 

Throughout all this, her parents have done everything possible to help their daughter and watched helplessly as her health worsened.

This spring, Layla saw a new doctor at Scottish Rite hospital, who suggested that they start all over and run new tests on Layla, including genetic tests. The results came back with an additional diagnosis of Emery-Dreifuss muscular dystrophy (EDMD). 

EDMD is a rare, inherited genetic disorder that affects skeletal muscles, digestion, lungs, heart, and vocal cords. After treating Layla for two years for CRPS, the Hurts found out that their daughter had also been suffering from untreated Muscular Dystrophy all along. 

Layla’s Needs

Now that the Hurts finally have some direction, they need your help. They are stretched to their financial limits from years of ineffective treatments and are awaiting multiple specialists’ appointments and possible surgeries. Some urgent needs they have are money to pay the specialists and surgeons for current treatments, as well as a lift chair to help move Layla around with as little pain as possible.

This beautiful young lady, 15 years old now, finally can get the care that she needs if we can band together and help her. 

If you are unable to assist financially, please consider sharing this post so that others might have the opportunity to help. The Hurts and everybody that loves them thank you for your generosity. 

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Comments
Anonymous user image
Alice Stone
It is traumatic to go through a medical situation but also one that financially devastates the family. Bless this wonderful family.
Profile image
Jimmy Heath
Praying for the Hurt family.
Anonymous user image
Jim Smith
God bless you and your family
Anonymous user image
JD Mendez
Sending Prayers.
Anonymous user image
Gina Malone
Sending best wishes and prayers to your family
Anonymous user image
Cody Mills
We love you Hurt family. “Now the God of hope fill you with all joy and peace in believing, that ye may abound in hope, through the power of the Holy Ghost.” ‭‭Romans‬ ‭15‬:‭13‬ ‭
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Jimothy Hurt
Love you layla I can't wait for you to get better
Anonymous user image
Anonymous
Our prayers and thoughts are with her and her family.
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Bruce Scott
I hope this helps. Your kids are everything!
Anonymous user image
Cassidy Bobbitt
Our hearts and prayers are with you.
Anonymous user image
Mark Espin
As someone who deals with neuromuscular disease I know its a struggle. Hopeful for a cure. God bless
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Jerry Stem
Love you guys !
Anonymous user image
Ernest Anzaldua
Prayers for your family.
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Michael Glynn
Keep fighting and taking care of your family. It is great seeing our L440 members stepping up as always to provide assistance as well!
Anonymous user image
Anonymous
Your family is in our prayers!
Anonymous user image
Mark Ware
Praying for comfort and healing for your daughter!
Anonymous user image
Jonathan Huddleston
We are praying for you and your family bro
Anonymous user image
Andrew Esparza Foundation
Sending prayers.. Stay strong and keep the faith 🙏🙏
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Anonymous
Praying for you and your family bro.
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Pam Bilbrey
FWFF family ♥️

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